Myositis Patient Centered Tele-Research (My PACER) Study

Cedars-Sinai Medical Center, in collaboration with the University of Pittsburgh, Division of Rheumatology and Clinical Immunology, is conducting an NIH-sponsored study entitled, “Myositis Patient Centered Tele-Research (My PACER).” The investigators for this study are Drs. Swamy Venuturupalli and Shalini Mahajan.

The study is being conducted on adult patients living in the United States with myositis (polymyositis, dermatomyositis, and necrotizing myopathy). Participants will be compensated $75 at the completion of the six-month study.

Myositis is a rare disease that causes inflammation of the muscles leading to muscle weakness in most cases. There is no FDA approved treatments for myositis. With rare diseases like myositis, it can be difficult to reach patients and perform the research needed to discover new treatments. The purpose of this study is to help researchers learn more about the best ways to recruit, monitor, and evaluate patients with myositis.

Researchers hope their findings will help myositis patients in the future.

To join the study, please contact the study coordinator:

Laura Palmas
[email protected]
(424) 666-2653

INVESTIGATORS

Swamy Venuturupalli, MD, FACR
Founder of Attune Health
Associate Clinical Professor of Medicine at UCLA
Attending Rheumatologist, Cedars-Sinai Medical Center
[email protected]

Shalini Mahajan, MD
[email protected]